Saturday, August 28

Polly who?

LifespanImage via WikipediaOkay, all the medically inclined out there. Tell me whatever you know about polymyositis, please. A person very dear to me has recently received this diagnosis. I am most concerned for the prognosis, lifespan issues - if any, etc. Thank you for your candor and sharing your time. One hopes to hear the best . . .
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2 comments:

castlesburning said...

Hi there! I was diagnosed with polymyositis at age 21 and just turned 30. I have serious issues with walking (the majority of the muscles in my upper legs have atrophied), chronic fatigue, etc. But overall, I'm doing ok -- even manage to work full-time, though I've had to make some career adjustments, and am in the process of buying my first home solo. While PM is definitely a huge adjustment, it's NOT a life sentence :-)

Barbara said...

I'm hoping this goes back to you but I've never responded to a comment in this manner. I'd like to here more about how you have adjusted your life with pm. Especially with the chronic fatigue, how can you work full time? I've been on disability for several years now and hoped to go back to work. Thanks Barbara